【摘要】 目的调查癌症患者家居主要照顾者的医疗资讯需求,以便为家属提供切实有效的健康教育。方法采用问卷形式,调查500名癌症患者家庭中的主要照顾者,收集资料包括:被调查者基本资料,有关照顾患者的资讯需求问卷、照顾患者的经验与态度等。结果家属对医疗资讯的需求中,最迫切希望了解的是关于家庭照顾(100.0%)和患者治疗(95.6%)的相关知识,即如何根据患者的疾病、症状及生理状况进行照顾和相应治疗。结论必需根据家属的需求提供切实有效的医疗护理常识培训,使家属更好地掌握照顾患者的技巧,同时提供适当的心理支持,提升患者家庭的生活质量。更多还原

【Abstract】 Objective To understand the demands for medical information in main health providers caring for patients with terminal cancer at home in order to provide relevant and effective health knowledge for the patients′ family members.Methods Five hundred home-care providers for cancer patients were interviewed with questionnaires,and their data were collected,including general information,demands for medical information,experience and attitude in caring patients,and so on.Results The most urgently needed medical information in family members of the patients included relevant knowledge of medical treatment,for example,how to take care of patients according to their physiological conditions,illness and symptoms(100.0%),as well as treatment for them(95.6%).Conclusion It is necessary to provide relevant knowledge,skills and more effective training,as well as adequate psychological support,for home-care providers according to their demands,so as to improve the quality of life in patients’ families.更多还原