【摘要】 目的调查成年癫痫患者的生活质量 (QOL)及其影响因素。方法采用美国癫痫生活质量调查问卷 10 (QOLEI 10 )和华盛顿癫痫心理社会问卷 (WPSI) ,对 2 0 0例成年癫痫患者进行了调查 ,随机取健康人作为对照组。结果患者组的QOL明显低于对照组 (P <0 .0 1)。主要因素是发作难以控制、经济拮据、就业不易、活动受限、交际困难、心理障碍 (抑郁、紧张、焦虑、惧怕、耻辱感、认知功能减退 )。就医方式错误、用药不当、药物的副反应等是患者面临的主要问题。结论癫痫患者的心理和社会因素影响了癫痫患者病情的控制并使其QOL下降更多还原

【Abstract】 ObjectiveTo investigate the quality of life (QOL) of the epilepsy patients and the factors affected the QOL.Methods200 cases were investigated using the Quality of Life in Epilepsy Inventory 10 (QOLEI 10) and the Washington Psychosocial Seizure Investigate (WPSI). 200 healthy persons were chosen as normal control group. ResultsThe QOL of the patient group were significantly poor as compared with that of normal control group( P<0.01). The factors that the patients always faced with were disability in the attack control, short in money, unemployment, restriction of movement, disability in intercommunication, psychological disorder (depress, strain, anxiety, dread, shame feel, cognitional dysfunction, etc.), as well as the difficult to get professional curtains, taking medicine improperly and side effects of the medicine. Conclusions The factors mentioned, which were usually neglected by many doctors, do affect the QOL of epilepsy patients, and hinder the epilepsy treatment effectively.更多还原