【摘要】 目的：总结13例小儿巨大血管瘤合并卡梅综合征的个体化护理经验，为临床护理工作提供参考依据。方法：回顾性分析某医院收治的13例巨大血管瘤合并卡梅综合征患儿，采取个性化治疗护理方案，预防感染，支持对症治疗，监测血常规、肝肾功能、血药浓度，所有患儿密切观察生命体征、意识、瞳孔、瘤体、肢体末梢及腹部体征变化，指导喂养。结果：13例患儿有2例出院后1个月内因血小板降低出血再次入院，其余患儿治疗过程顺利，无并发症发生。结论：婴儿巨大血管瘤伴卡梅综合征患儿要做好入院评估及健康宣教，观察患儿神志意识变化、皮肤黏膜及生命体征变化，监测血常规、肝肾功能、血药浓度，重点做好预防出血、瘤体破溃、栓塞等并发症的护理是治疗血管瘤成功的关键，同时要做好健康教育和延续居家护理。更多还原

【Abstract】 Objective:To summarize the personalized nursing experience of 13 children with giant hemangioma complicated with Carmel syndrome,and to provide reference for clinical nursing work.Methods:Retrospective analysis was performed on 13 children with carmel syndrome with giant hemangioma treated in Anhui Children’s Hospital from March 2017 to February 2022.Individualized treatment and nursing plan was adopted to prevent infection,support symptomatic treatment,monitor blood routine,liver and kidney function,and blood drug concentration.All the children were closely observed vital signs,consciousness,pupils,tumor,extremities and abdominal signs,feeding and nursing.Results:2 of the 13 children were readmitted to hospital due to thrombocytopenia bleeding less than 1 month after discharge,and the rest of the children were treated smoothly without symptoms.Conclusion:infantile huge hemangioma with Kasabach-Merritt syndrome should be admitted to hospital assessment and health education,observe children mind consciousness changes,skin and mucous membrane and vital signs,monitoring the blood routine,liver and kidney function,blood drug concentration,focus on prevention of bleeding,tumors had burst,embolization complications such as nursing is the key to successful treatment of hemangioma,At the same time,health education and continuing home care.更多还原