【摘要】 沉重的家庭照料负担极易导致农村重度残疾人家庭陷入致贫返贫风险。对河北、河南、山东、湖北及广东等地428个农村重度残疾家庭的调查显示,家庭成员是重度残疾人最主要的照料者,以提供生活照料为主。农村重度残疾人家庭不仅面临着医疗康复等客观负担、照料者的精神负担和心理压力,还面临着因照料重度残疾人所产生的机会成本。当前,农村重度残疾人照料负担的社会分担机制存在着明显的短板。为巩固拓展残疾人脱贫攻坚成果,防止贫困边缘群体返贫,需要大力整合残疾人社会救助、老年福利及扶贫政策资源,扩大集中托养服务覆盖面,开展照料者照料知识和技能培训,构建照料负担的多元参与分担机制。更多还原

【Abstract】 The heavy burden of family caregiving can contribute to poverty or return to poverty for severely disabled families in rural areas Based on micro survey of 428 rural families with severe disabilities in Hebei, Henan, Shandong, Hubei and Guangdong provinces, the results show that family members are primary caregivers of severely disabled people, mainly providing daily care In summary, rural families with severe disabilities not only bear the objective burden of medical rehabilitation, the mental burden and psychological pressure of caregivers, but also face the opportunity cost caused by taking care of severely disabled persons At present, there are obvious shortcomings in the social sharing mechanism of the burden of care for the severely disabled people In order to consolidate and expand the achievements of poverty alleviation for persons with disabilities and prevent marginalized poverty from returning to poverty, it is necessary to integrate social assistance for persons with disabilities, old-age welfare and poverty alleviation policy resources, expand the coverage of centralized care services, carry out training on caregiver’s knowledge and skills, and build a multi-participation mechanism for sharing care burdens.更多还原