【摘要】 目的评价家庭管理干预对0~6岁癫痫患儿家庭管理水平的影响。方法选取2015年4月1日—11月30日在某省儿童医院住院的0~6岁癫痫患儿家庭作为研究对象,随机分为实验组和对照组,每组各53个家庭。两组均于患儿入院诊断为癫痫24 h内由调查员发放一般情况调查表、癫痫疾病知识掌握情况调查表和家庭管理量表进行基线调查,实验组除接受常规治疗、护理和健康教育外,还接受由研究者实施的为期6个月的家庭管理干预,对照组接受常规治疗、护理和健康教育。患儿出院3个月和出院6个月回院复查时对两组家长的癫痫疾病知识掌握情况和家庭管理情况进行再调查。结果干预前两组基线比较,差异无统计学意义(P>0.05);两组不同时间点癫痫疾病知识掌握情况和家庭管理量表总得分情况的时间效应和交互效应差异有统计学意义(P<0.05);干预后两组癫痫疾病知识掌握情况和家庭管理量表各分量表得分情况差异有统计学意义(P<0.05)。结论家庭管理干预可以提高0~6岁癫痫患儿家庭管理水平,有利于患儿康复。更多还原

【Abstract】 Objective To evaluate the effectiveness of family management on improvement of management level for families with epilepsy children aged 0 to 6 years. Methods Families with epilepsy children aged 0 to 6 years hospitalized from April 1 st to November 30 th,2015 in our hospital were recruited and randomly divided into the control group and the intervention group. Within 24 hours after being diagnosed as epilepsy,general information questionnaire,epilepsy knowledge survey questionnaire and Family Management Scale(Fa MM) were used for baseline survey. The control group received conventional treatment,nursing and health education. The intervention group received family management intervention for 6 months besides conventional treatment,nursing and health education.Epilepsy disease knowledge and family management were investigated at 3 months and 6 months after discharge.Results There was no difference between two groups at baseline(P>0.05). For different periods of the study,time factor and interaction existed in epilepsy disease knowledge and total score of Fa MM(P<0.05). After intervention,there were significant differences in epilepsy disease knowledge and scores of Fa MM between two groups(P<0.05).Conclusion Family management intervention can improve family management level of families with epilepsy children aged 0 to 6 years. The intervention contents are detailed and concrete,the intervention method is easy to perform,and the effects are significant,and the intervention is convenient for clinical application.更多还原