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癌症患者的信息需求——《癌症患者信息选择问卷》的编制与评估

Information Needs of Cancer Patients (1)Development and Evaluation of Information Preference Questionnaire for Cancer Patients

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【作者】 黄雪薇张瑛王秀利吕保祥李廷杰

【Author】 HUANG Xuewei, ZHANG Ying, WANG Xiuli, et al. Guangdong College of Pharmacy, Guangzhou 510224

【机构】 广东药学院临床医学系广东药学院医学统计学教研室广州市肿瘤医院中山医科大学肿瘤医院广东药学院医学统计学教研室 (510224)(510224)(510224)

【摘要】 目的 :研制和测评癌症患者信息选择问卷 (IPQCP)。方法 :以严谨的程序编制问卷 ,并随机抽取 5 0 1例癌症患者、 169位亲属和 86位医护人员进行测定 ,对问卷作筛选和信度、效度等分析。结果 :1 最后问卷共有 19个条目 ,含诊断、治疗、预后、其他四个维度。 2 四个维度和总分的重测信度分别为 0 85、0 81、 0 83、 0 76和 0 96;Cronbachα分别为 0 82、 0 89、 0 99、 0 89和 0 95 ;分半信度为 0 95。 3 问卷能较好反映癌症患者对信息内容和量的需求 ,结构与设计的理论构思相符 ,参照Cassileth信息清单的效标效度为0 91。结论 :IPQCP具有较好的信度和效度 ,在临床上有一定的实用价值。

【Abstract】 Objectives:To develop and evaluate Information Preference Questionnaire for Cancer Patients (IPQCP).Methods:A self-report questionnaire was developed with structured methods. A total of 501 cancer patients, 169 relatives,86 doctors and nurses were asked to complete the questionnaire in order to refine it and to evaluate its reliability and validity.Results:1. IPQCP was finally refined as a questionnaire with 19-item, 4 dimensions including diagnosis, treatment, prognosis and others. 2. The test-retest coefficients for the 4 dimensions and the total score were 0.85,0.81,0.83,0.76 and 0.96 respectively, Cronbach alpha for them were are 0.82,0.89,0.99,0.89 and 0.95 respectively. The split-half reliability for the questionnaire was 0.95.030. The questionnaire reflected the content and amount of information needed by cancer patients. Its construct was consistent with the concept designed. The criterion validity with Cassileth’s information list was 0.91.Conclusions:IPQCP has high reliability and validity. It is applicable in clinic practice in China.

【基金】 广东省医学科学技术研究基金资助 (编号A1 9992 70 )
  • 【文献出处】 中国心理卫生杂志 ,Chinese Mental Health Journal , 编辑部邮箱 ,2003年11期
  • 【分类号】R730
  • 【被引频次】75
  • 【下载频次】675
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